Official communication concerning the governance and operation of the IDF Life for a Child programme.
A personal account of a training workshop on paediatric diabetes conducted by Drs. Fran and Neal Kaufman in Addis Ababa, Ethiopia on 9-11 April 2018.
Amita’s parents were working overseas when she was diagnosed. A terrifying and overwhelming time, she was in hospital for a week.
In rural Nepal absolute poverty is widespread and, even poorly paid jobs are hard to find.
”If it wasn’t for Life for a Child the story of type 1 diabetes in Liberia would only be expressed as mortality rate. Management of diabetes at the individual level is beyond challenging due to pervasive poverty resulting in food scarcity and the inability to purchase insulin” Augustine, our man on the ground in Liberia.
Life for a Child has commenced new work towards sustainability in diabetes care.
For Life for a Child two key pillars of sustainability include promoting health systems reform and encouraging advocacy.
James Ron, one of our great advocates in the USA recently wrote about his son’s diagnosis and why he supports the program:
‘’When our two-year old son, Sacha, was first diagnosed my wife, Emma and I scrambled to figure out how to get him the help he needed - long and short-acting insulin, syringes, test strips, Glucagon, HbA1Cs, etc. etc. - we wondered, "how do parents in poor countries cope?"
''I live in Chimaltenango in Guatemala and I am 16 years old. Eight years ago I started to lose weight, I was very thirsty and urinated very often.
During 2016 Life for a Child supported 18,653 young people living with type 1 in 42 countries. Check out the highlights here.
Conducting a camp or activity day can be very daunting for diabetes centers in less-resourced countries so we encourage all the centers we support to start small, think about doing a 2 hour support group and build from there. We give comprehensive guidance and support for the first activity, and offer a manual and ad-hoc advice for subsequent activities.
Just as in more economically resourced countries; the impact camp has on young people, cannot be underestimated, as this young boy in Nigeria says:
It was a sticky, humid day in Colombo, Sri Lanka when I met Kassun. I was visiting the Sri Lankan Diabetes Association to meet young people supported by the program and the health professionals caring for them. The association had arranged for me to see the kids with the biggest challenges, none with HbA1c below 11.5%.
Thank you to the Diabetes Online Community! Over $22,000 was raised by Spare a Rose during 2017, enabling Life for a Child to support 369 young people with the insulin, tools and education they need to manage their diabetes.
Imagine not having a refrigerator to store insulin! In some countries, evaporative cooling using clay pots are an alternative to a refrigerator. No one really knew how efficient these alternatives were so Life for a Child conducted a study to find out.
The latest update of the IDF Life for a Child (LFAC) Programme is now available, including information on LFAC's work in Bolivia, Pakistan and the Democratic Republic of Congo.
The featured story is from Bolivia, where Katie Souris, a post-graduate student from the USA, recently visited the LFAC supported center in the country to look at the challenges facing young people with diabetes, and investigate the possibilities of peer support.
Darlenis is the only young person living with T1D on San Cristobal Island, in the Galapagos Archipelago, so has very little support regarding her diabetes management. Darlenis contacted our colleague, Aracely Basurto, from FUVIDA diabetes center in Ecuador, seeking advice.
The IDF Life for a Child (LFAC) Programme encourages the diabetes centres in countries it supports to conduct camps or activity days for children and young people with diabetes.
To this end LFAC, in collaboration with the Diabetes Education and Camping Association (DECA), has developed Guidelines for conducting diabetes camp activities in a less-resourced country.
"Camp" is a term that includes not only overnight stays, but also activity days, support meetings, and get-togethers for children, adolescents and young adults with diabetes and their families.
This Valentine’s Day, the Spare a Rose Save a Child campaign will once again raise awareness and donations for the IDF Life for a Child Programme by encouraging people to buy one less rose and donate the value of that flower to children with diabetes.
In 2014, the International Diabetes Federation Life for a Child (LFAC) Programmes's largest donor - The Leona M and Harry B Helmsley Charitable Trust - commissioned the London School of Hygiene and Tropical Medicine to conduct a comprehensive formal evaluation of the work of LFAC.
The work was conducted by a team lead by Professor Martin McKee and Dr. Sue Atkinson. Site visits were done in five countries: Rwanda, India, Jamaica, Mexico, and Philippines.
Eli Lilly and Company, a major contributor to the IDF Life for a Child Programme (LFAC), recently announced an additional commitment of 780,000 vials of insulin to LFAC.
Lilly’s new commitment builds on the company’s previous donation of 800,000 vials of insulin over the past six years, which reached more than 14,000 children in approximately 34 countries. Over the next three years, Lilly will donate approximately 260,000 vials of insulin each year to Life for a Child. This commitment will allow LFAC to continue providing treatment for children in the countries where the programme currently operates and to increase the amount of insulin supplied for distribution.
"Lilly's donation of insulin offers continued hope to children and families in need who are trying to manage type 1 diabetes in very challenging conditions," said Dr Graham Ogle, LFAC General Manager.
This Valentine’s Day, the Spare a Rose Save a Child campaign was once again a resounding success with over USD 24,000 raised for the IDF Life for a Child Programme (LFAC). Thanks to the 684 donations received, more than 400 children with diabetes in the developing world will be kept alive for one year.
As the end of 2014 nears, it is exciting to reflect that the IDF Life for a Child (LFAC) Programme has not only expanded support to six new countries but also increased the number of centres in countries already participating in the programme. Some 15,000 children and youth in 48 developing countries and the health professionals who care for them, are currently receiving a variety of resources free of charge from LFAC.
Boehringer Ingelheim, a partner of the International Diabetes Federation, continued its support for the International Diabetes Federation's Life for a Child (LFAC) Programme by organising a fundraising event in the lead up to World Diabetes Day (WDD) - 14 November. This is the sixth year they have supported this programme.
If you follow the IDF Life for a Child Programme on Facebook, you may already have read and been inspired by Veerle Vanhuyse. Veerle contacted LFAC in August, while training for the 2014 TCS New York City marathon, wanting to raise money for the Programme. A dedicated runner, Veerle was diagnosed with type 1 diabetes at the age of 16, and 27 years on intimately understands the challenges diabetes can present on a daily basis.